Other links to find information about other research centers
- Sick Kids Foundation
- French Association of Lafora
- Spanish Association of Lafora
- Italian Association of Lafora
- Becky’s Dream
- Caring Bridge: Matthew DeSimas
- Let Us Beat Lafora
- Hope for John
- George Mark Children's House
- Cheryl Bigman Photography
 | Lafora Disease, also known as Lafora Progressive Myoclonus Epilepsy, is a rare form of epilepsy that strikes children usually between the ages of 9 and 14. Symptoms become increasingly worse within a short period of time. Symptoms include: seizures, myoclonic jerks, cognitive decline, difficulty walking, severe hallucinations, and dementia. It eventually leads to death within 10 years of the onset of the disease. |
 | "Welcome to our CaringBridge site. It has been created to keep friends and family updated about Matthew's battle with Lafora Disease. We’ve set this site up as the demands of his illness has kept us from keeping in touch as much as we should." |
  | "We are the Gajic family from Banja Luka in Bosnia and Hercegovina. Our two girls, Tatjana and Milana are suffering from the Lafora disease." |
 | "Welcome to Hope For John, a website born out of love, inspiration and of course hope for John Sharp, a wonderful young man who is suffering from Lafora Body Disease." |
 | "First children's hospice house in the U.S. providing medical, emotional and practical support to families with children that have life-threatening and terminal illnesses." |
 | "Cheryl Bigman Photography specializes in on-location portraiture of children and families, personal portraits, and documentary photography. Cheryl focuses on creating artistic images that evoke emotion and showcase relationships." See the Chelsea’s Hope Project under the Portfolio section of Cheryl’s website. |
