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Chelsea’s Hope began in the fall of 2007 as a means to share our story about our daughter Chelsea and her diagnosis of Lafora disease. Feeling helpless, hopeless and alone is our sorrow we began to realize we could no longer continue to live under the black cloud of despair that was Lafora. We connected with the world’s leading experts in Lafora research and soon thereafter, through the power of the internet, began to find other Lafora families and encouraged them to join our cause of creating awareness, connection and raising money for research. |
Meet and Learn About the Children of Chelsea’s Hope:
Adela Richer
Amanda Gellel
Amarah Ahmed
Angel Shumate
Becky Cotton
Chelsea Gerber
Chelsea Merrill
Diane Gellel
DJ Lucken
Elisa Brackin
Jake Buie
Janine Rodriquez
Jessica Ambroe
Jessica Faludi
Jessica Masoner
John Sharp
Kelsey Harris
Kristen Rice
Kristopher Shumate
Lucy Terceira
Mallorie Lindo
Matthew DeSimas
Milana Gajic
Shamoan Ahmed
Tatjana Gajic
Taylor Nicole Mankins
We would love to hear from you, especially if you know someone or have a family member affected by Lafora disease.
Have an idea for a fundraiser? Please let us know.
Chelsea’s Hope Lafora Children Fund is a 501(c)3 non-profit organization. Your donation supports Lafora research and is tax-deductible to the fullest extent of the law.
