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Please note that there is a change in where to send donations...

We have had a problem with the Walnut Creek P.O. Box.

Please send all donations to UCLA.
Thank You.

Searching for a cure...



Latest News & Information
Learn about Lafora, its symptoms, research developments, and the progress from the Doctor's searching to find a cure.

We thank the doctors for keeping us informed.

Life can change in an instant



Chelsea Gerber
Chelsea was a bright, energetic, young girl who loved school, running, dancing, playing sports, swimming, hanging out with friends, going to the movies, and all that was fun.

Your generousity can save lives.



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Future research into treatment and a cure for Lafora Disease is only possible with your generous contributions.

Two parent's provide insight into their lives caring for Chelsea.



Howard and Linda Gerber
We would like to share our thoughts and bits of our lives with you here in this online diary

The stories of children with Lafora

• Chelsea Gerber
• Jessica Faludi
• Kristen Rice
• Mathew DeSimas
• Jake Buie
• Abdul Ali
• Kris and Angel
• Adela Richer
• Diane Victoria Gellel
• Amanda Gellel
• Lucy Terceira

If you know someone who has Lafora, please send us your story.

Another Perspective

"A Step Removed"

I am a step removed...

I wonder how many people really understand what it is like to be the primary caretaker of a neurologically compromised young adult...