Chelsea's Hope - Lafora Research Fund

*We are proud to announce that as of October 2009, Chelsea's Hope is a non-profit Public Benefit California

Corporation. This new designation allows for the continued support of research being conducted at

UCLA as well as Hospital for Sick Children, Toronto, and elsewhere.*

The specific purpose of this corporation is to aid and assist the Lafora Researchers by raising funds for research, treatment, and cures for those afflicted by Lafora.

In addition, our goal is to raise awareness about Lafora and to provide connections and assistance for families in the form of education, emotional and general support.

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`Featured Story` "Hope for John" * Lafora mum, Alice Morgan of the Jersey Islands, UK., speaks about Lafora and its affects on son, John Sharp... Jersey News "Islanders in Jersey have turned out in their thousands to help find a cure for what is at present a terminal illness. Last year a Jersey teenager was diagnosed with Lafora Body Disease - an extremely rare condition. There are only 200 known cases in the world." For more of this story, click here	Fundraising Update Jess's Army Joins Chelsea's Hope* and together we are going to win this battle... Already, Michele (Jess's mother) and her many friends have impacted Chelsea's Hope. Please read about the Pennsylvania fundraisers that have been sponsored on behalf of Jess. read more about Jess's Army	Life can change in an instant Chelsea Gerber Chelsea was a bright, energetic, young girl who loved school, running, dancing, playing sports, swimming, hanging out with friends, going to the movies, and all that was fun. read her story * Parent's provide insight into their lives caring for their children. read the diaries: Howard and Linda Gerber Michele Ambroe Lisa DeSimas Gabriela & Edmond Richer

Searching for a cure... January 2010 Research Update from Dr. Minassian "My laboratory has discovered the genes that cause Lafora disease. We called these genes EPM2A and EPM2B..." read the update	Research updates and information new update December 2009:* Research Update from Dr. Escueta* "...seven children with Lafora disease are waiting to start the IV Gentamicin trials..." read more More information from Escueta: "Why Genotyping"	Your generousity can save lives. Donate Online or by Mail Future research into treatment and a cure for Lafora Disease is only possible with your generous contributions. details

		. The stories of children with Lafora Chelsea Gerber Jessica Faludi Kristen Rice Matthew DeSimas* Jake Buie Abdul Ali Kris and Angel Adela Richer Diane Victoria Gellel Amanda Gellel Lucy Terceira John Sharp Douglas Jacob Lucken Sonam Ahmed Shamoan Ahmed Amarah Ahmed Jessica Ambroe Taylor Nicole Mankins Elisa Brackin*