
Fundraising Report (last updated April 13, 2008)
I am so proud to say that in the few months since the inception of Chelsea’s Hope, we have raised $90,000. While this is just the tip of the iceberg for what we need to raise to accomplish the research goals we have in mind, the money we have raised thus far has come to us from a variety of sources and has not entailed a major fundraiser or incorporated our big email letter blast. We are so thankful to the people who have contributed; from friends who have turned birthday parties, selflessly, into fundraising opportunities to students who give their time generously. Every dollar makes a difference and each dollar represents hope.
Northern California 2008 Fundraiser
We hope to begin the process of planning a major fundraising event for later this year or early next year in Northern California. If you are interested in helping, we would welcome your input and ideas. Contact us at chelseashope@gmail.com
East Coast Fundraising Efforts
Boston, MA. Host and organizer is Steven DeSimas, Matt’s dad. This is a fantastic repeat event that is scheduled for September 28, 2008. All proceeds benefit Lafora research, More details to follow.

Media and Publicity:
Very soon we will begin the process of getting media and newspaper attention to bring to light the awareness of Lafora and how it is affecting our children. More to follow
We appreciate any and all suggestions to help us raise awareness about Lafora in general and Chelsea’s Hope in particular so that we can bring much needed attention for research dollars. Fundraising can be as passive as giving a birthday party and asking for donations instead of gifts, or youth run carwashes, bake sales, and yard sales.
It can also be a huge undertaking as in throwing a large scale event with auction items, entertainment, food and music.
Whichever approach you choose to take to assist us with fundraising, WE NEED YOUR HELP AND ARE GRATEFUL FOR IT.
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