Parents,
We would like to make sure that all patients have had their data recorded in our central files and that we are aware of your child’s mutation information.
If you are not sure your child’s Athena lab results are in Dr. Berge Minassian’s database at The Hospital for Sick Children in Toronto please email: Julie Turnbull at jturnbull@sickkids.ca
In the subject line or body of the email, please mention that you are sending us your mutation information from the chelseashope.org website.
Thank you,
The Lafora Research Team
If you know someone who has Lafora, please send us your story
