Chelsea's Hope - Contact Us

Howard, Linda, Chelsea and Collin - Disneyland 2006

"Incredible dreams produce incredible results."

Note to Lafora Parents - From the Doctors

Parents,
We would like to make sure that all patients have had their data recorded in our central files and that we are aware of your child's mutation information.

If you are not sure your child’s Athena lab results are in Dr. Berge Minassian’s database at The Hospital for Sick Children in Toronto please email:
jturnbull@sickkids.ca

In the subject line or body of the email, please mention that you are sending us your mutation information from the chelseashope.org website.

Thank you,
The Lafora Research Team

Contact Information

Email:connect@chelseashope.org
Phone: 925-963-7122

To mail donation or correspondence, please send to :

Chelsea’s Hope
Post office box 1984
Danville, CA 94526

Thank you for your interest in Chelsea's Hope.

We appreciate your support and invite you to contact us with your thoughts, ideas, comments, photos, and stories.

Your Contributions Go to Research

On behalf of the David Geffen School of Medicine at UCLA, I wish to express our appreciation for your donation to the Chelsea’s Hope: Lafora Children’s Research Fund within the Department of Neurology. This resource will be used to further our research, which is focused on not only improving treatments that enhance the quality of life for individuals with Lafora progressive myoclonus epilepsy, but also ultimately finding a cure. It is through contributions such as yours that my colleagues and I can step up the pace to more fully understand this devastating condition and thus bring innovative care to those who suffer from it. Your belief in our mission is critical, and we thank you for your generosity and commitment to help us combat Lafora disease.

Sincerely,

Antonio V. Delgado-Escueta, M.D.
Professor of Neurology
David Geffen School of Medicine at UCLA
Director, Epilepsy Center of Excellence
VA Greater Los Angeles Healthcare System – West Los Angeles