Welcome to the Chelsea’s Hope family chat. This is the private forum for Lafora families to share their concerns, love, support and HOPE.
Chelsea’s Hope Chelsea’s Hope began in the fall of 2007 as a means to share our story about our daughter Chelsea and her diagnosis of Lafora disease. Feeling helpless, hopeless and alone is our sorrow we began to realize we could no longer continue to live under the black cloud of despair that was Lafora. We connected with the world’s leading experts in Lafora research and soon thereafter, through the power of the internet, began to find other Lafora families and encouraged them to join our cause of creating awareness, connection and raising money for research.
We invite families affected by Lafora to join our family chat blog.
Click here to join the Chelsea’s Hope Family Chat.