See Linda and Howard's Live Television Interview on ABC News
June 1, 2009
"Family turns disease into support for others. A couple is hoping to turn their daughter's terminal illness into something positive."
Watch the Live Interview
Watch the Extended Interview
Chelsea's Hope in ALIVE Magazine
"Imagine an active and vivacious teenage girl who is as healthy and vital as her classmates...And imagine that this girl, at the age of 14, suffers her first grand mal seizure..."
read more
|
|
Searching for a cure...
Latest News & Information
Learn about Lafora, its symptoms, research developments, and the progress from the Doctor's searching to find a cure.
We thank the doctors for keeping us informed.
|
|
Life can change in an instant
Chelsea Gerber
Chelsea was a bright, energetic, young girl who loved school, running, dancing, playing sports, swimming, hanging out with friends, going to the movies, and all that was fun.
|
|
Research updates and information
Why Genotyping?
Read how Genotyping Adolescent PME will separate Lafora disease from Univerricht-Lundborg PME and from Juvenile Myoclonic Epilepsy.
Your generousity can save lives.
Donate Online or by Mail
Future research into treatment and a cure for Lafora Disease is only possible with your generous contributions.
|
|
Two parent's provide insight into their lives caring for Chelsea.
Howard and Linda Gerber
We would like to share our thoughts and bits of our lives with you here in this online diary
Another Perspective
"A Step Removed"
I am a step removed...
I wonder how many people really understand what it is like to be the primary caretaker of a neurologically compromised young adult...
|
|
The stories of children with Lafora
"Some people come into our lives and quickly go. Some stay for a while and leave footprints on our hearts, and we are never, ever the same."
-Anonymous
If you know someone who has Lafora, please send us your story.
* indicates new update
|
