Chelsea′s Hope began in the fall of 2007 as a means to share our story about our daughter Chelsea and her diagnosis of Lafora disease. Feeling helpless, hopeless and alone is our sorrow we began to realize we could no longer continue to live under the black cloud of despair that was Lafora. We connected with the world′s leading experts in Lafora research and soon thereafter, through the power of the internet, began to find other Lafora families and encouraged them to join our cause of creating awareness, connection and raising money for research.

Meet the Children of Chelsea’s Hope


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A Year of Hope – Celebrating Chelsea’s 25th Birthday

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Please join me on April 10, 2016 as Vera Faludi with family and friends memorialize Jessica Faludi (April 18, 1974- December 9, 2015). Let us show our love and respect from all corners of the world by sharing a special thought, prayer or devotion to Jessica.
Jessica lived with Lafora disease for nearly 25 years and both she and her mum, Vera, have been an inspiration to the families of Chelsea’s Hope as they have provided guidance, love and support to all of us who are walking the same path.
May the memory of Jessica brighten the hearts of all who knew and loved her. She is an angel watching over our children and guiding the researchers in the discovery of a cure for Lafora Disease.

To read about Jessica and all our children, please visit www.chelseashope.org.
Your financial support brings us closer to a cure every day! We are forever grateful!
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Last night we had the pleasure of meeting Rhoda Harris from London at a BBQ hosted by Linda Gerber. Rhoda's daughter Janet passed away from Lafora Disease in 1981 when there were only 30 known cases worldwide. She recently found the Chelsea's Hope website and asked to meet Linda and Chelsea while visiting family in California. For her 80th birthday in June, Rhoda requested donations be made to Chelsea's Hope in lieu of gifts which brought in $25,000! Here are some photos of our time together honoring Rhoda with Chelsea, Linda, Chelsea's grandma, and many great friends and supporters of Chelsea's Hope.
You can read Janet's story on the Chelsea's Hope website: www.chelseashope.org/janet-lee-harris/
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The Models of Chelsea's Hope for Macy's Fashion Show on May 3rd. From left Kt Waxman, Ashley Waxman, Samantha Hanlon, Linda Rader Gerber, Julie Benatar Hahn, Linda Grossman Volpe, Kim Lyons, and Skylar Wondrusch. It was a blast! We extend a special thank you to Judith Markowitz, friend and coordinator of our event at Macy's Walnut Creek and her amazing personal shoppers and model fitters, the fabulous friends who strutted their stuff on the runway, and all who attended, shopped and donated to our cause. To those who gave generously to support this event but could not attend, you were missed and we are grateful for your support...maybe next time, we'll get you on the runway with us! ... See MoreSee Less

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Registration has been extended to April 26! Don't miss the Macy's fashion show benefitting Chelsea's Hope. If you can't attend, you can donate here: www.chelseashope.org/donate/ ... See MoreSee Less

Macy's Walnut Creek, CA Benefit Fashion Show

May 3, 2015, 10:00am


Join us for fashion, fun and celebration to celebrate Chelsea's Hope!

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