Chelsea′s Hope began in the fall of 2007 as a means to share our story about our daughter Chelsea and her diagnosis of Lafora disease. Feeling helpless, hopeless and alone is our sorrow we began to realize we could no longer continue to live under the black cloud of despair that was Lafora. We connected with the world′s leading experts in Lafora research and soon thereafter, through the power of the internet, began to find other Lafora families and encouraged them to join our cause of creating awareness, connection and raising money for research.

Meet the Children of Chelsea’s Hope


Macy's Fashion Show
A Year of Hope – Celebrating Chelsea’s 25th Birthday

Join us for fashion, fun and celebration to benefit Chelsea’s Hope

Sunday, May 3, 2015 at 10:00am
Macy’s Walnut Creek, CA

-Continental Breakfast
-Fashion Show
-Welcome Gift
-Macy’s Friends & Family 25% discount
-Personal Shoppers

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Chelsea's Hope Lafora Children Research Fund shared Cheryl Bigman Photography's photo. ... See MoreSee Less

It’s been a rough few weeks for the families of Chelsea’s Hope and for me personally. Today is beautiful Elisa Brackin’s memorial service. She is the 7th child out of the (10) kids I photographe...

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Today is #RareDiseaseDay, and no action is too small to help raise awareness and funds for research to cure the debilitating and extremely rare #LaforaDisease. Learn more and donate at chelseashope.org! ... See MoreSee Less

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This week Lafora Disease has taken two of our beautiful Chelsea's Hope children from their families and left a hole in their hearts that will never heal. Please join in a prayerful moment to offer strength and solemn condolences to the families of Jake Buie and Jessica Boatright Masoner. It is the saddest of days...May their memories be a blessing to all who knew them and their courage be an inspiration to us all. ... See MoreSee Less

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