Chelsea′s Hope began in the fall of 2007 as a means to share our story about our daughter Chelsea and her diagnosis of Lafora disease. Feeling helpless, hopeless and alone is our sorrow we began to realize we could no longer continue to live under the black cloud of despair that was Lafora. We connected with the world′s leading experts in Lafora research and soon thereafter, through the power of the internet, began to find other Lafora families and encouraged them to join our cause of creating awareness, connection and raising money for research.

Meet the Children of Chelsea’s Hope


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A Year of Hope – Celebrating Chelsea’s 25th Birthday

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I have had the honor of being President of Chelsea's Hope for several years. I encourage you to view this video and consider donating at www.chelseashope.org. We need to put a stop to this horrible disease. ... See MoreSee Less

We invite you to view 'Living with Lafora', a video presented to the researchers, families and attendees at the 2016 Lafora Symposium in June.

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We invite you to view 'Living with Lafora', a video presented to the researchers, families and attendees at the 2016 Lafora Symposium in June. ... See MoreSee Less

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Please join me on April 10, 2016 as Vera Faludi with family and friends memorialize Jessica Faludi (April 18, 1974- December 9, 2015). Let us show our love and respect from all corners of the world by sharing a special thought, prayer or devotion to Jessica.
Jessica lived with Lafora disease for nearly 25 years and both she and her mum, Vera, have been an inspiration to the families of Chelsea’s Hope as they have provided guidance, love and support to all of us who are walking the same path.
May the memory of Jessica brighten the hearts of all who knew and loved her. She is an angel watching over our children and guiding the researchers in the discovery of a cure for Lafora Disease.

To read about Jessica and all our children, please visit www.chelseashope.org.
Your financial support brings us closer to a cure every day! We are forever grateful!
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Last night we had the pleasure of meeting Rhoda Harris from London at a BBQ hosted by Linda Gerber. Rhoda's daughter Janet passed away from Lafora Disease in 1981 when there were only 30 known cases worldwide. She recently found the Chelsea's Hope website and asked to meet Linda and Chelsea while visiting family in California. For her 80th birthday in June, Rhoda requested donations be made to Chelsea's Hope in lieu of gifts which brought in $25,000! Here are some photos of our time together honoring Rhoda with Chelsea, Linda, Chelsea's grandma, and many great friends and supporters of Chelsea's Hope.
You can read Janet's story on the Chelsea's Hope website: www.chelseashope.org/janet-lee-harris/
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